By Prodyut Das

25 JUNE “WORLD VITILIGO DAY” 2012

by Christina BEJENARU (VR Foundation)
(Russia)

Vitiligo

Vitiligo

Over 100 million of people suffer from this skin disease daily, but there is no cure in sight. With focus on collaboration efforts, we can bring that number closer to zero.


Take action today and urge the UN Secretary-General to prioritize multilateral efforts in healthcare and education for this neglected disease.

The 25June Initiative aims to increase awareness of vitiligo and raise funds for research, national vitiligo associations and support groups. Led by the VR Foundation, this year’s goal is to mark World Vitiligo Day on June 25 a date to be observed annually by the United Nations.

Longer term the 25June Initiative aims to generate knowledge of vitiligo, its appropriate care, arrest and treatment methods amongst the general public, health care providers, and governments.

This year we aim to raise 500,000 signatures to address the United Nations in order to:


  • - Recognize this neglected and debilitating disease associated with severe social complications;

  • - Recognize the urgent need to pursue multilateral efforts in therapy development and health-care education;

  • - Designate June 25 as the World Vitiligo Day to be observed by the United Nations and Member States every year.






Recognition is the first step for the prevention, better treatment and care of vitiligo in line with the sustainable development of national health-care systems.

There are a lot of people who don't want you to stand up for your rights and demand a cure. They say vitiligo is not life threatening and not contagious, and you must embrace a life of a pariah, hiding yourself from sunlight and from the society.

Vitiligo is an under-researched disease resulting in milky white skin patches on the skin. The breadth and complexity of the disease require international collaboration in therapy development. The severity of the disease calls for national healthcare support.

So, speak up for your condition and your rights. Sign the letter to tell the UN Secretary-General that you want recognition and support. It would be appreciated if you could give every member of your family or group an opportunity for signing.





Vitiligo


Physiotherapy Treatment



Comments for 25 JUNE “WORLD VITILIGO DAY” 2012

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Jun 25, 2012
Rating
starstarstarstarstar 		celebrating world vitiligo day
by: Anonymous

Happy world vitiligo day to everyone.
Mar 25, 2012
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starstarstarstarstar 		Köszönöm!!!
by: Anonymous

Köszönöm mind azoknak akik felvállalják és kiállnak a vitiligosokért!

Mar 23, 2012
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starstarstarstarstar 		this date
by: Anonymous

we have been waiting for this date to happen, we will support it till it happens.
Mar 19, 2012
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starstarstarstarstar 		sucess
by: Anonymous

I would like to thank you for the efforts you have made for this people.Ready to hear more in the future.thank you for share.
Mar 19, 2012
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starstarstarstarstar 		Its need of the time
by: Anonymous

The sooner we understand this the better. Is is long overdue.
Mar 19, 2012
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starstarstarstarstar 		Thank you !!
by: Anonymous

I hope that we will raise enough signatures and save millions of people worldwide from social isolation and persecution

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